July 24, 2011

Where did we leave off . . . okay since our last post, we took Haley home from the hospital.  We were so excited because we had a big surprise for her.  While Dad Dawayne is on the road with his band, we converted his studio into a livingroom for Haley, she pretty much has her own apartment now in the basement because it is equiped with fridge, microwave, food cabinet, HD TV, the works.

  She said it was more than she could have ever hoped for.  Now when she is quarantined in the basement, she will be well entertained.  I moved her piano down to her livingroom also so she could still play.
 
  So we are getting ready for her to be discharged from the hospital and I (mom) ask the nurse when they are going to take her tube out and de-access her port . . . looking at me funny she said . . . "oh we are leaving her accessed because you will be giving her antibiotic injections every 8 hours" WHAT!!! Someone forgot to mention that to us so we had to stay at the hospital for a few more hours to be trained on how to take care of an accessed port and inject antibiotics, SCARY!!!  We stayed up until 11:00 p.m to get more training from the home health nurse.  I would have to say me (mom) and Darianne did a pretty good job.

 

  Saturday was the "Hope for Haley Bake Sale" put on by Kiersten Price and Liz Starley.  Munchkin Radio Station was there and there were little tents set up for baked goods, quilts, jewelry and raffle tickets.  It was a huge success.  So many people came to show their support.  Aaron Medford (Haley's uncle) came and purchased a quilt, Val and Dave Jeffs came, tons of people from the ward and neighborhood.  I wish I knew all of their names. 
  
Ben and MaryAnn barbequed hotdogs for all those that came.  Grandma LuAnn made nearly 150 cinnamon rolls and every single one of them sold.  Oh my, that is crazy.  I was expecting to come home to a few trays of those.  No such luck :)  Thank you, thank you for all you that came and those of you that participated to make this event memorable.  We are so lucky to live in such an awesome neighborhood.

  

Only a couple of days after being home from the hospital Haley started to feel a little bit dizzy so we took her temperature on three different thermometers all reading 101.7.  Back to the ER we go.  After Tangled and Lord of the Rings we finally got back up to the 4th Floor, ICU.  We love the 4th Floor doctors and nurses.  They are so attentive up here and we have an awesome view of the 24th fireworks. Yay!!!  See, there is always something to be grateful for.  Nurses that bring really good pain meds, effective sleep aid and a room with a view :)