Maintenance

“Like any race that’s worth the running, it helps to have miles of support, thanks to all of those who stand cheering on the sidelines!” The Fray

Friday, March 30, 2012, marks Day 1 of “Maintenance.”  Haley has crossed the goal line of the hardest and most uphill battle of the marathon she has been running for the past 10 months.  Two weeks ago, Haley and I were sitting in the waiting room at Primary’s Children Hospital, Oncology Clinic for a routine weekly checkup when Dr. Holly Spraker burst through the door and told us she had some really good news for us. . . . okay . . . since Haley has been categorized as “rapidly responding to treatment” and they have never seen cancer cells in her spinal fluid, she gets to skip the next two-month course of treatment and will move right into Maintenance . . . YAY/cry/cry!!!  The hope of reaching this point in treatment has been the light at the end of the tunnel that we have been holding fast to these past 10 months.  Dad Dawayne and Grandma Glenda cried . . . and Haley and I celebrated with strawberry crepes at Village Inn . . . hehe J.  Darianne (Haley’s sidekick) accompanied us to this appointment to share in this good news and we all met Grandma LuAnn for lunch at the University Cafeteria. 

This may sound unusual to say, but these last few months have been the hardest but yet, in so many ways, the greatest months of my entire life.  I have seen the compassion and kindness of perfect strangers . . . the miracles of modern medicine . . . the dedication and heartfelt staff of the nurses and doctors at Primary Children’s Medical Center . . . the generosity of companies and small businesses. . . and the unbelievable unity of friends, family and neighbors that have sacrificed and helped our family in sooo many ways.  I feel sooo unbelievably blessed and overcome with gratitude and love for all of these people.  Haley’s home health nurse, Cheryl . . . told me just the other how much she has come to love Haley and Community Nursing even spotlighted Haley in the Art Show.  I have seen two sisters, who have never gotten along, become best friends.  Makayla was invited to see a movie with a friend just the other day and without a second thought, told her friend “Haley has been dying to see that movie, there is no way I can see it without her.”

Last week I received a phone call from The Make a Wish Foundation.  Haley has been selected to participate in this program and I am still in shock and awww . .  over some of things this Foundation does for kids like Haley . . . WOW!!!  More to come on that event!!! Sooo stay tuned . . . .